Planning for the Future for Your Child With AADC
Being the parent of someone with a chronic disease such as aromatic L-amino acid decarboxylase (AADC) deficiency can be exhausting and challenging. Many parents ... Read more
Updates
-
-
Warning Signs of Depression in AADC Deficiency Caregivers
Being the parent or caregiver of a patient with a chronic disease such as aromatic L-amino acid decarboxylase (AADC) deficiency can be an exhausting and ... Read more -
What is an Individualized Education Plan for AADC Deficiency?
Aromatic L-amino acid decarboxylase (AADC) deficiency is a genetic disorder that affects brain development, and causes physical and developmental delays in children. School and ... Read more -
NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, ... Read more -
How Could Gene Therapy Help AADC Deficiency Patients?
Gene therapy — replacing a faulty gene in the body — may hold the answers to the permanent treatment of aromatic l-amino acid decarboxylase ... Read more
-
Tips for Managing Stress for AADC Deficiency Caregivers
Aromatic l-amino acid decarboxylase (AADC) deficiency is a rare disease that affects children from ... -
How to Improve Diet and Nutrition for Children with AADC Deficiency
Since eating can be difficult for children with aromatic L-amino acid decarboxylase (AADC) deficiency, ... -
DDC Mutations Associated with Risk of Developing Severe Malaria, Review Study Shows
Mutations in the dopa decarboxylase (DDC) gene — the gene associated with aromatic L-amino ... -
At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing
Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is ... -
How to Build a Treatment Plan for School/Daycare for a Child with AADC
Effectively managing your child’s aromatic l-amino acid decarboxylase (AADC) deficiency can be challenging. Because ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.