Eurordis is welcoming a recent call for the inclusion of health priorities, including an action plan on rare disorders,…
Articles by Mary Chapman
Eurordis has welcomed as a “significant stride forward” the latest European Parliament plenary vote for compromise amendments to bridge…
The U.S. Food and Drug Administration (FDA), in collaboration with Duke University’s Duke-Margolis Center for Health Policy, will hold a…
The National Organization for Rare Disorders (NORD) is offering a new education series to help patients understand how treatments…
Global rare disease organizations emphasized the importance of universal health coverage (UHC) for people with rare diseases during a side…
Delaware has become the 27th state in the U.S. to establish a Rare Disease Advisory Council (RDAC) to empower…
Phreesia has acquired MediFind, which uses advanced analytics to help patients, particularly those with serious, chronic, and rare…
For the first time, the rare disease patient advocacy organization Global Genes will hold its RARE Health Equity…
The Sanford CoRDS 13th Annual Great Plains Rare Disease Summit will focus on rare neurodevelopmental disorders such as…
At a May 4 awards ceremony that will also mark the anniversary of its 1983 founding, the National Organization…