The clock struck 3:10 in the afternoon, and the bell let out a final scream. I waved goodbye and gave…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
We prepared each meal with diligent slicing, dicing, and pureeing. Each menu and food item was selected thoughtfully for its…
Years ago, my wife, Judy, and I received the news that our daughter’s clinical trial application had been approved, allowing…
Instead of asking what’s the matter with my child, ask what matters to my child. What do I need for…
It took years of persuading our daughter, Rylae-Ann, to hop into the curved seat of the playground swing on…
As a child, I hated expecting the same old routine. The best days were when something unexpected happened. Excitement and…
Parenting is already a full-time job, but the list of tasks mounts for parents of children with health challenges. After…
Before my daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, I had no idea about the…
When our daughter, Rylae-Ann, was 18 months old, my wife, Judy, and I learned she had a rare disease known…
My wife, Judy, and I had stayed up late for meetings and written papers advocating for the approval of Upstaza…