As parents, Judy and I have learned that change can mean very different things to different children. For many, change…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
I’ve never been someone who spends time looking back to psychoanalyze my past or delve deeply into philosophy. Instead, I’m…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
When you’re the parent of a child with a rare disease like aromatic l-amino acid decarboxylase (AADC)…
For our family, July felt like running a marathon while juggling. The month involved a constant mix of motion, focus,…
Rylae-Ann, my daughter, was born with aromatic l-amino acid decarboxylase (AADC) deficiency, an ultra-rare neurotransmitter disorder that…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
Parenting a child with a rare disease often means celebrating daily triumphs and overcoming unexpected hurdles. For my wife, Judy,…
As parents of a child with aromatic l-amino acid decarboxylase (AADC) deficiency, travel has always required strategic…
It was bound to happen. After six years of dodging it, our daughter, Rylae-Ann, finally caught COVID-19. For my wife,…