As parents of a child with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and I…
Articles by Richard E. Poulin III
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, we quickly learned that…
Each year, AADC Awareness Day brings together families, advocates, researchers, and supporters from around the globe. It’s more than just…
For many children with aromatic l-amino acid decarboxylase (AADC) deficiency, gene therapy holds opportunities for the future.
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, the first thing the…
As a husband and father of a child with a rare disease, I’ve seen firsthand how being a caregiver can…
Starting something new is never easy for a child with aromatic l-amino acid decarboxylase (AADC) deficiency, especially…
As parents, Judy and I have learned that change can mean very different things to different children. For many, change…
I’ve never been someone who spends time looking back to psychoanalyze my past or delve deeply into philosophy. Instead, I’m…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…