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Recent Posts
- Uplifting Athletes Tackles Funding for Rare Disease Research, Awareness
- Ultra Rare Celebrity Jam to Raise Funds for Rare Disease Patients
- New Institute Aims to Leave No Rare Disease Patient Behind
- Group Focuses on Rare Disease Clinical Trial Participation
- Free Regulatory Support Offered to Ultra-rare Disease Advocates
- ‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon
- ‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases
- Register Now for Global Genes’ RARE Patient Advocacy Summit
- Virtual AADC Deficiency Awareness Day is Oct. 22
- NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration