OneMedNet expands capabilities with real-world rare disease data
Collaboration with Datavant uses AWS clean rooms to facilitate data pooling
OneMedNet, a provider of real-world healthcare imaging data, will expand its capabilities to enable secure collaboration for researchers investigating rare diseases and other complex medical questions.
By providing de-identified, curated datasets, OneMedNet hopes to fuel innovation around rare diseases like aromatic l-amino acid decarboxylase (AADC) deficiency. The company’s new offerings will leverage Amazon Web Services (AWS) clean rooms, which allow partners to collaborate without sharing raw data, and use Datavant Connect, a platform designed to manage large-scale data while maintaining regulatory compliance.
“Much of today’s healthcare data remains untapped due to complexity and interoperability issues,” Aaron Green, OneMedNet’s president and CEO, said in a company press release. “Datavant Connect powered by AWS Clean Rooms effectively removes these barriers, positioning OneMedNet as an indispensable partner for organizations aiming to fully harness the potential of healthcare data.”
For AADC deficiency and other ultra-rare disorders, clinical data may not be readily available to researchers and drug developers. This can make it difficult to investigate potential disease causes or further the development of new therapies. Combining data allows researchers to study diseases across a broader population than would be possible in a single study.
OneMedNet helps its clients access this type of pooled data. The company says its networks include more than 31 million patients from across the U.S., and it vets its data sources to make sure they are compliant with data privacy regulations.
Curating datasets based on user requests
OneMedNet’s experts curate datasets based on specific requests from users, such as data on patients that meet demographic requirements, according to the company’s website, and it provides real-time updates on the same patients as additional data becomes available. With this longitudinal access, researchers can keep their analyses up to date.
The Datavant Connect platform, meanwhile, aims to help users develop scalable data strategies while maintaining security and privacy for sensitive health records.
“Cross-referencing our data with existing datasets through the Datavant ecosystem confirms its unique value, ensuring it’s additive, non-redundant and cost-effective,” Green said in a separate press release. “This collaboration … will accelerate the ability of organizations to advance evidence-based solutions and access critical patient-level insights, all while safeguarding privacy.”
Integrating AWS Clean Rooms into the partnership will allow collaboration in secure environments without any data directly moving, an approach the company says enhances data security and privacy while enabling analysis across data sources.
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