Many parents may dread the summer break from school, but for my wife, Judy, and me, it’s a time to create memorable moments. With our daughter, Rylae-Ann, the greatest of these is when we’re at the beach. Growing up on an island in the Pacific, I’ve always connected with…
The clock struck 3:10 in the afternoon, and the bell let out a final scream. I waved goodbye and gave high-fives to eager students. The middle of June marks the end of my academic year as principal and the start of a long break, for which I’ve dedicated several weeks…
Parenting is already a full-time job, but the list of tasks mounts for parents of children with health challenges. After work during the week and on weekends, my wife and I operate as a team to coordinate our 5-year-old daughter Rylae-Ann’s care and therapy sessions, as she…
Twelve plane trips, five states, and several adventures later, I feel blessed our family had a marvelous month-long summer vacation. However, as the vacation comes to a close, I am reminded that although our daughter, Rylae-Ann, received gene therapy to treat her aromatic l-amino…
Advanced planning is important when traveling with a child who has aromatic l-amino acid decarboxylase (AADC) deficiency. Healthcare Be sure to take your child to see his or her primary physician at least a month before you leave. During the visit, the doctor can review your son’s or daughter’s…
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