Colorful dough can power our children’s play and learning
After the dough came out hot from the oven, I added drops of dye into three balls of it. I worked the different colors into the dough to create a favorite and timeless childhood…
Richard E. Poulin III is an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family’s journey.
Every April, as the blazing sun rises higher in the Thai sky, buckets are filled, water guns are loaded, and smiles stretch wide across faces. For most families, Songkran, the Thai New Year, is…
Read moreAfter the dough came out hot from the oven, I added drops of dye into three balls of it. I worked the different colors into the dough to create a favorite and timeless childhood…
A notification pops up on my phone. It’s from Facebook, sharing a memory from five years ago. The clip shows me holding my daughter, Rylae-Ann, who’s playing with a ball. However, I acted as…
In June, I celebrated my 40th birthday. The day went as planned. Family showered me with attention, friends rubbed in the major milestone, and Facebook well wishes came pouring in. Entering the second half…
My wife, Judy, and I sat on our sofa in a cool, dark room despite it being the middle of the afternoon. We tried to keep our daughter asleep in an effort to avoid…
Our daughter, Rylae-Ann, blinked her eyes a few times before scanning the white room. A warm smile instantly appeared when her hazel eyes fell on my wife, Judy. That’s how she began the…
Aromatic l-amino acid decarboxylase (AADC) deficiency is a rare genetic disease with only about 135 cases seen worldwide since it was identified in 1990. So where do we go…
Meeting another father whose daughter has a rare disease always prompts a free-flowing and earnest discussion. When it happens, I don’t refrain from opening up. I had an eye-opening experience during a recent meeting…
My full and undivided attention was dedicated to navigating the stroller over cobblestone sidewalks. When I reached the end, I executed a 180-degree motion so that the back wheels descended the high curb first…
Warm water flows across our child’s scalp and soothes her. Other times, the water tickles her and makes her feel anxious. Over time, these observations supported us in making her bathing experience pleasant. Children…
Our daughter throws a toy across the room or whines about not having an iPad before plopping her hands in her food at dinnertime. While these frustrating behaviors are an annoyance, they’re also a…
While holding my daughter Rylae-Ann’s hands like a puppeteer, I allowed her fingers to touch the wet snout of a horse. She let out a giggle. That was the moment her love for animals…
The clock struck 3:10 in the afternoon, and the bell let out a final scream. I waved goodbye and gave high-fives to eager students. The middle of June marks the end of my academic…
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