What is an Individualized Education Plan for AADC Deficiency?

What is an Individualized Education Plan for AADC Deficiency?

Aromatic L-amino acid decarboxylase (AADC) deficiency is a genetic disorder that affects brain development, and causes physical and developmental delays in children.

School and daycare can be challenging for children with AADC deficiency, but social interaction is important for any child’s development. One of the tools that parents and caregivers can use to help a child with special needs in school is an individualized education plan (IEP).

What is an IEP?

An IEP is a detailed plan worked out by the school administration and the parents or caregivers of a child with special needs. It lays out special accommodations that the child requires, and the support and services that will be provided by the school or daycare center.

How do I build an IEP for my child?

To get started building an IEP, ask your child’s physician about the medical care your child will need during their time at school or daycare. Can these treatments be administered by the school nurse? Can your child walk between classes? Can he or she sit comfortably during the class period? Does he or she need an exemption from physical education classes?

Next, talk to school administrators about the services they can provide. Outline your child’s schedule and include benchmarks for their schooling. How will your child be tested in comparison with their peers? What goals do you have for your child’s time in daycare or school?

Make changes when necessary

An IEP is expected to change as your child grows and develops. After a few months or a year, some accommodations may not be necessary while new ones may need to be added. Discuss any changes with the school and your child’s physician.

 

Last updated: Oct. 2, 2019.

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AADC News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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