As the 118th U.S. Congress begins its work, the National Organization for Rare Disorders (NORD) is showcasing the importance…
Articles by Mary Chapman
The national outcomes-based patient support organization Curant Health has joined rare360, a Rare Advocacy Movement (RAM) partnership program…
Medable, a technology platform for clinical trials, has partnered with the nonprofit Every Cure to speed the discovery…
In marking the 40th year of the Orphan Drug Act (ODA) — used by the U.S. Food and Drug…
As U.S. lawmakers prepare to head home for the holidays, the National Organization for Rare Disorders (NORD) held out…
Since its founding more than 25 years ago, Eurordis has presented and promoted initiatives to ensure that people with…
An upcoming U.S. survey, reported to be the first of its kind, aims for a better understanding of barriers to…
While the National Organization for Rare Disorders (NORD) is pleased Congress voted to reauthorize the Food and Drug…
A free live webinar on Sept. 20 will explore various aspects of rare disease clinical trials — and offer insight…
The NORD Rare Diseases & Orphan Products Breakthrough Summit, set for Oct. 17–18, will feature a range of speakers and…