As my daughter’s shaky hand brought the food to her mouth, sauce and pieces of food stuck to her long,…
Articles by Richard E. Poulin III
As I carried my daughter, Rylae-Ann, to bed one night over Christmas vacation, I noticed my arms shake…
Life as a rare disease family can feel isolating at times. Not many people can relate to our challenges or…
Judy, my wife, and I sat slumped on a bench in a random park that we’d stumbled upon as we…
Social networks offer a public platform for people to share their ideas, but authenticity can be a challenge to identify…
Even before our daughter, Rylae-Ann, had gene therapy, we knew that she would require immediate and intensive intervention due…
The road to potty training our daughter was one of the most difficult journeys my wife, Judy, and I set…
Rebirth is a common theme that appears in such classic stories as “Sleeping Beauty,” “Beauty and the Beast,” “A Christmas…
When my wife, Judy, and I discovered that our daughter, Rylae-Ann, has a rare, neurotransmitter disease known as…
My wife, Judy, and I recently attended our third awareness day event for aromatic…