In June, I celebrated my 40th birthday. The day went as planned. Family showered me with attention, friends rubbed in…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Richard E. Poulin III
My wife, Judy, and I sat on our sofa in a cool, dark room despite it being the middle of…
Our daughter, Rylae-Ann, blinked her eyes a few times before scanning the white room. A warm smile instantly appeared when…
Aromatic l-amino acid decarboxylase (AADC) deficiency is a rare genetic disease with only about 135 cases…
Meeting another father whose daughter has a rare disease always prompts a free-flowing and earnest discussion. When it happens, I…
My full and undivided attention was dedicated to navigating the stroller over cobblestone sidewalks. When I reached the end, I…
Warm water flows across our child’s scalp and soothes her. Other times, the water tickles her and makes her feel…
Our daughter throws a toy across the room or whines about not having an iPad before plopping her hands in…
While holding my daughter Rylae-Ann’s hands like a puppeteer, I allowed her fingers to touch the wet snout of a…
The clock struck 3:10 in the afternoon, and the bell let out a final scream. I waved goodbye and gave…