Mornings in our house are always a bit like a relay race — with the occasional baton drop. Last week,…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Richard E. Poulin III
My wife, Judy, and I have spent our careers teaching at bilingual schools, where the curriculum is delivered in at…
Our daughter, Rylae-Ann, has journeyed from fighting for her life to living out a childhood dream. While she still faces…
Social media is an extraordinary tool, especially for families affected by rare diseases who are scattered across the globe. Without…
Our daughter, Rylae-Ann, lost her first tooth not too long ago, and boy was it an event. She’d been wiggling…
As the summer days grew shorter and the start of first grade loomed closer, we found ourselves reflecting on the…
After an enlightening experience at the mall — where my wife, Judy, and I witnessed the calming influence that…
Once again, my family took a summer trip to Taipei, Taiwan, to contribute data to a clinical trial. Our daughter,…
A few weeks ago, our daughter, Rylae-Ann, mentioned she had a wiggly tooth. I gently pushed her teeth and found…
Finding places to visit with our 6-year-old daughter, Rylae-Ann, has been challenging. But keeping her unique needs in mind when…