My wife and I enrolled our daughter, Rylae-Ann, who has aromatic l-amino acid decarboxylase (AADC) deficiency, in…
Articles by Richard E. Poulin III
It would be impossible to name all of the people and organizations that have helped us over the last four…
When the holidays approach, we scour department stores to find an outfit our 4-year-old daughter, Rylae-Ann, can wear so…
In a sea of more than 7,000 rare diseases, it is remarkable to have a day to call our own.
Our first Christmas Eve as a family was spent in a park. My wife, Judy, and I sat on a…
Once we finally knew what our daughter, Rylae-Ann, had, we also learned that genetically, she wouldn’t be able to move.
Rylae-Ann was born by an emergency cesarean section. As Mom was stitched up and came off the anesthesia, I remained…
In September 2021, a post came across my Facebook news feed about a freelance writing position for AADC News. My…
It may be an ill-formed sentence someone blurts or deliberate malice. Either way, any negativity expressed about our daughter, spoken…
Today, our daughter, Rylae-Ann, sits at a piano and explores the sounds she can make, then jumps off the stool…