Airports are notorious for their challenging security and health requirements. Parents of children with special needs may find the thought…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
Beneath my daughter’s skin, I know there are muscles, and deeper still is the desire to move. I know it’s…
Father’s Day has just passed in the United States, and I appreciate all the wishes and wonderful comments I receive…
Imagine that arms reach into your warm and dark shelter of solitude and thrust you into blinding lights and chaos.
One hour of physical therapy cost us $150. Therapy rooms were filled with swings, mats, blocks, and an array of…
Chimes and notifications began to appear on my phone on the morning of May 20. Messages and questions in my…
Our genetics are not written in stone. Who we are and who we will become is not a predetermined story…
Our attempts to feed our daughter, Rylae-Ann, who has aromatic l-amino acid decarboxylase (AADC) deficiency, were never a leisurely process.
I often write about various types of therapy in relation to aromatic l-amino decarboxylase (AADC) deficiency, as I believe…
Gene therapy is complete! Now what? The first day after receiving the monumental gift of our daughter partaking in a…