As a husband and father of a child with a rare disease, I’ve seen firsthand how being a caregiver can…
Articles by Richard E. Poulin III
Starting something new is never easy for a child with aromatic l-amino acid decarboxylase (AADC) deficiency, especially…
As parents, Judy and I have learned that change can mean very different things to different children. For many, change…
I’ve never been someone who spends time looking back to psychoanalyze my past or delve deeply into philosophy. Instead, I’m…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
When you’re the parent of a child with a rare disease like aromatic l-amino acid decarboxylase (AADC)…
For our family, July felt like running a marathon while juggling. The month involved a constant mix of motion, focus,…
Rylae-Ann, my daughter, was born with aromatic l-amino acid decarboxylase (AADC) deficiency, an ultra-rare neurotransmitter disorder that…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
Parenting a child with a rare disease often means celebrating daily triumphs and overcoming unexpected hurdles. For my wife, Judy,…