When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency at just 8 months…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
People often tell me they cannot believe everything my wife, Judy, and I have managed to juggle over the years.
When our daughter, Rylae-Ann, first walked into a classroom at a private international school in Thailand, it felt like a…
Most parents dream about the day their child finally sleeps through the night. When our daughter, Rylae-Ann, finally did, my…
Before becoming parents of a child with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
Before we had a diagnosis, before we understood words like “neurotransmitters” or “genetic mutations,” my wife, Judy, and I were…
In the past, I’ve written about our family’s “therapy vacations.” Trips where every activity had a purpose,…
There are moments in parenting that feel small when they happen, but later you realize they carry the weight of…
When NASA launches a rocket, most people watch for a few minutes, feel a sense of awe, and move on…
There was a stretch of time when I genuinely thought I was going insane. Night after night, the crying…