As our family gathers around the table on Thanksgiving, I know we’ll once again take a moment to reflect on…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
Within the community of people with aromatic L-amino acid decarboxylase (AADC) deficiency, we refer to the day…
Last week, Judy, my wife, and I had the privilege of attending the International Neurotransmitter Disorders Conference…
As parents of a child with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and I…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, we quickly learned that…
Each year, AADC Awareness Day brings together families, advocates, researchers, and supporters from around the globe. It’s more than just…
For many children with aromatic l-amino acid decarboxylase (AADC) deficiency, gene therapy holds opportunities for the future.
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, the first thing the…
As a husband and father of a child with a rare disease, I’ve seen firsthand how being a caregiver can…
Starting something new is never easy for a child with aromatic l-amino acid decarboxylase (AADC) deficiency, especially…