When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and…
Articles by Richard E. Poulin III
Parenting a child with a rare disease often means celebrating daily triumphs and overcoming unexpected hurdles. For my wife, Judy,…
As parents of a child with aromatic l-amino acid decarboxylase (AADC) deficiency, travel has always required strategic…
It was bound to happen. After six years of dodging it, our daughter, Rylae-Ann, finally caught COVID-19. For my wife,…
I’ve always struggled to find the right words for what I’m about to describe. Maybe it’s because it feels too…
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and I were…
My daughter, Rylae-Ann, is a beautiful, bright little girl with a rare genetic condition called aromatic l-amino…
During a recent visit from another parent whose child has aromatic L-amino acid decarboxylase (AADC) deficiency, a…
With just two weeks left in the school year, my wife, Judy, and I find ourselves reflecting deeply on how…
As the summer sun shines brightly, it presents an excellent opportunity for families to make plans that can significantly affect…