I’ve always struggled to find the right words for what I’m about to describe. Maybe it’s because it feels too…
Articles by Richard E. Poulin III
When our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, my wife, Judy, and I were…
My daughter, Rylae-Ann, is a beautiful, bright little girl with a rare genetic condition called aromatic l-amino…
During a recent visit from another parent whose child has aromatic L-amino acid decarboxylase (AADC) deficiency, a…
With just two weeks left in the school year, my wife, Judy, and I find ourselves reflecting deeply on how…
As the summer sun shines brightly, it presents an excellent opportunity for families to make plans that can significantly affect…
For parents of children with rare diseases, progress is rarely linear. Each milestone is hard-earned, often built upon months or…
For most parents, watching their child take their first steps is a moment of joy and celebration. For my wife,…
As families across Thailand gathered to ring in the Thai New Year during Songkran with…
Every April, as the blazing sun rises higher in the Thai sky, buckets are filled, water guns are loaded, and…