Glow sticks danced in the air as I snapped pictures of us in our striped socks. The fun day was…
Articles by Richard E. Poulin III
Chinese New Year celebrations are a two-week extravaganza filled with food and excitement that can overwhelm the senses. Our daughter,…
One minute, it was a slow coo, and the next, a high-pitched scream. It may have sounded obnoxious to a…
I placed travel neck pillows around my daughter, Rylae-Ann, to make sure she was snug in the swing. I slowly…
As my daughter’s shaky hand brought the food to her mouth, sauce and pieces of food stuck to her long,…
As I carried my daughter, Rylae-Ann, to bed one night over Christmas vacation, I noticed my arms shake…
Life as a rare disease family can feel isolating at times. Not many people can relate to our challenges or…
Judy, my wife, and I sat slumped on a bench in a random park that we’d stumbled upon as we…
Social networks offer a public platform for people to share their ideas, but authenticity can be a challenge to identify…
Even before our daughter, Rylae-Ann, had gene therapy, we knew that she would require immediate and intensive intervention due…