As Christmas approached, Rylae-Ann practiced jingles and dances onstage while decked out in a colorful costume. When showtime came, however,…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
My daughter, Rylae-Ann, was born with a rare and debilitating genetic disease known as aromatic l-amino acid…
A supportive and loving community has sprung up around my daughter, Rylae-Ann. She says hello to everyone she meets…
The sun hadn’t even risen yet, but my daughter, Rylae-Ann, was already melting down about changing out…
As I straightened my tie in the mirror, I could hear my daughter’s giggles getting progressively louder as she stumbled…
As I tried desperately to fall asleep after a long day, my daughter’s fingertips danced around my jawline. They explored…
Our daughter, Rylae-Ann, failed to meet her milestones at 3 months old. From that point on, she was limp and…
My wife, Judy, and I have attended webinars, conferences, and other events to share our perspective on our daughter’s experience…
My wife, Judy, and I have dedicated our professional lives to educating children. Books are an essential tool, but I…
Our daughter, Rylae-Ann, quickly prepared a selection of delicious ice cream and scooped some onto a cone. She excitedly called…