Once we finally knew what our daughter, Rylae-Ann, had, we also learned that genetically, she wouldn’t be able to move.
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
Rylae-Ann was born by an emergency cesarean section. As Mom was stitched up and came off the anesthesia, I remained…
In September 2021, a post came across my Facebook news feed about a freelance writing position for AADC News. My…
It may be an ill-formed sentence someone blurts or deliberate malice. Either way, any negativity expressed about our daughter, spoken…
Today, our daughter, Rylae-Ann, sits at a piano and explores the sounds she can make, then jumps off the stool…
After work a week ago, on a Monday, it was straight home. We grabbed our packed suitcases and headed for…
At 5:30 a.m., I quietly sneak out of bed, wash, dress, and straighten my tie. As I finish getting myself…
Once Singapore’s warm, tropical sun had set, a cool breeze became noticeable. With only the palm trees swaying above my…
When I don’t know how to do something, I’m the type of person to go figure it out. YouTube has…
Our daughter’s first three years of life were spent in a hospital. The first year involved diagnostic testing and fighting…