As we prepared for the arrival of our daughter, Rylae-Ann, we expected some cute baby drooling. We were even excited…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
As my friends and I sat in the shade under two large cabanas, members of the hotel staff brought us…
Twelve plane trips, five states, and several adventures later, I feel blessed our family had a marvelous month-long summer vacation.
Another hospital visit and another test. Searching for answers for the condition of our daughter, Rylae-Ann, meant constant hospital admissions.
As the sun crept higher into the beautiful morning sky, we decided to eat breakfast at a nearby park. The…
Airports are notorious for their challenging security and health requirements. Parents of children with special needs may find the thought…
Beneath my daughter’s skin, I know there are muscles, and deeper still is the desire to move. I know it’s…
Father’s Day has just passed in the United States, and I appreciate all the wishes and wonderful comments I receive…
Imagine that arms reach into your warm and dark shelter of solitude and thrust you into blinding lights and chaos.
One hour of physical therapy cost us $150. Therapy rooms were filled with swings, mats, blocks, and an array of…