Raising our daughter, Rylae-Ann, has been an incredible journey full of lessons and challenges, requiring use to consistently reshape our…
Articles by Richard E. Poulin III
Being a parent teaches many life lessons, but parenting a child with a rare disease like aromatic…
Aromatic l-amino acid decarboxylase (AADC) deficiency is a rare genetic disorder that disrupts the production of neurotransmitters,…
As my wife, Judy, and I drove through the streets of Taipei on a recent trip to celebrate the…
In December 2018, my wife, Judy, and I embarked on a journey from Singapore to Taiwan, driven by nothing more…
When we discovered our daughter, Rylae-Ann, was born with the rare disease aromatic l-amino acid decarboxylase (AADC)…
Mornings in our house are always a bit like a relay race — with the occasional baton drop. Last week,…
My wife, Judy, and I have spent our careers teaching at bilingual schools, where the curriculum is delivered in at…
Our daughter, Rylae-Ann, has journeyed from fighting for her life to living out a childhood dream. While she still faces…
Social media is an extraordinary tool, especially for families affected by rare diseases who are scattered across the globe. Without…