When I first learned about the severe symptoms associated with aromatic l-amino acid decarboxylase (AADC) deficiency, standing seemed like an impossibility for my now 3-year-old daughter, Rylae-Ann. However, physical therapists told me about a device that makes standing possible while serving as a form of therapy. At the time…
The Journey of Beautiful Destinations — Richard E. Poulin III

Richard E. Poulin III is an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family’s journey.
