Earlier this year, CheckRare, a learning platform for healthcare professionals and rare disease patients, held a…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
When my daughter, Rylae-Ann, was about 3 months old, she wasn’t meeting her milestones. Then came the “spells,” which we…
The chat message came late in the evening just a couple of weeks before Christmas 2018. My wife, Judy, and…
Late in the evening, a car-hailing service picked us up, and with a hurried but firm voice, we told the…
What are the chances that a girl from Taiwan would marry a man from the U.S., whom she happened to…
The taxi came to a halt in front of our house on Sunday morning. The windows were tinted, but I…
Every time doctors attempted to provide a diagnosis for our daughter, Rylae-Ann, we immediately would join the relevant support communities,…
Singapore, a tropical island located near the equator at just over 1 degree north latitude, is known for its lush…
During our family’s diagnostic journey to find answers, we were prescribed various medications. After discovering that our…
Things change, there’s no denying that. But when you’re handed the unexpected news that your baby, who was born healthy,…