The taxi came to a halt in front of our house on Sunday morning. The windows were tinted, but I…
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
Every time doctors attempted to provide a diagnosis for our daughter, Rylae-Ann, we immediately would join the relevant support communities,…
Singapore, a tropical island located near the equator at just over 1 degree north latitude, is known for its lush…
During our family’s diagnostic journey to find answers, we were prescribed various medications. After discovering that our…
Things change, there’s no denying that. But when you’re handed the unexpected news that your baby, who was born healthy,…
Once we started joining aromatic l-amino acid decarboxylase (AADC) deficiency communities, families began reaching out, offering support, and providing information.
When a parent sees their child gripped with fear or anxiety, we immediately take action to reassure them that everything…
We struggled to comprehend the news and reeled from the shock when our daughter, Rylae-Ann, was diagnosed with a rare…
Our daughter, Rylae-Ann, has medical records scattered around because of multiple visits to the hospital, traveling to…
We have seen several doctors in various countries in order to provide our daughter, Rylae-Ann, with the best healthcare and…