Once we started joining aromatic l-amino acid decarboxylase (AADC) deficiency communities, families began reaching out, offering support, and providing information.
Richard E. Poulin III
an American currently working as Head of Middle School for an international school in Bangkok, Thailand. He is also the president of the nonprofit organization Teach RARE. In 2018 his newborn daughter, Rylae-Ann, was diagnosed with the ultra-rare disease, aromatic l-amino acid decarboxylase (AADC) deficiency. Richard shares his journey and aims to provide caregivers with strategies and tips to improve their family's journey.
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Articles by Richard E. Poulin III
When a parent sees their child gripped with fear or anxiety, we immediately take action to reassure them that everything…
We struggled to comprehend the news and reeled from the shock when our daughter, Rylae-Ann, was diagnosed with a rare…
Our daughter, Rylae-Ann, has medical records scattered around because of multiple visits to the hospital, traveling to…
We have seen several doctors in various countries in order to provide our daughter, Rylae-Ann, with the best healthcare and…
Genetic testing has gained much attention thanks to commercial products that provide people with details about their family’s origin. With…
My wife and I would not have accomplished as much as we have without our support network. These people have…
Before our daughter, Rylae-Ann, was diagnosed with aromatic l-amino acid decarboxylase (AADC) deficiency, the telltale sign that something was amiss…
I had read a guide for dads before my daughter was born, so I knew what to expect before that…
Before my daughter, Rylae-Ann, showed symptoms of aromatic l-amino acid decarboxylase (AADC) deficiency, we had her in the ocean and…