Chimes and notifications began to appear on my phone on the morning of May 20. Messages and questions in my…
Articles by Richard E. Poulin III
Our genetics are not written in stone. Who we are and who we will become is not a predetermined story…
Our attempts to feed our daughter, Rylae-Ann, who has aromatic l-amino acid decarboxylase (AADC) deficiency, were never a leisurely process.
I often write about various types of therapy in relation to aromatic l-amino decarboxylase (AADC) deficiency, as I believe…
Gene therapy is complete! Now what? The first day after receiving the monumental gift of our daughter partaking in a…
A sense of foreboding filled my mind when I first read that there are no approved treatments for aromatic l-amino…
Since our family’s first trip to the hospital on that dark and rainy night a few years ago, hospitalizations have…
Our daughter, Rylae-Ann, was born in April 2018. By December of that year, she had been diagnosed with aromatic l-amino…
Several years ago, sleepless nights plagued my wife, Judy, and me. This in turn allowed the fog of confusion to…
As the plane descended, my wife, Judy, and I peered out the window. We could see some city lights sprinkled…